Federally Funded IC Research Centers

IC research is done at a wide variety of urology clinics. Many local and regional clinics participate in pharmaceutical company sponsored studies and/or may conduct their own research. Universities are the foundation for IC research not only for their access to excellent researchers but also large populations of patients who might participate. IC research centers which are funded by the National Institutes of Health (NIDDK) are often considered the best in the country.

There have been several IC research network in the past, including the ICCRN and the CPCRN that were united under a single umbrella organization, the UPPCRN (Urologic Pelvic Pain Collaborative Research Network). in 2008, the MAPP research network was introduced and is now the dominant IC research team.

MAPP Study Centers

FLORIDA
University of Miami Miller School of Medicine Miami, FL
Principal Investigator: Thomas M. Hooton, MD
Contact: Gabriel Blaschke (305) 243-2576 gblaschke@med.miami.edu

ALABAMA
University of Alabama at Birmingham Birmingham, AL
Principal Investigator: Timothy J. Ness, MD, Ph.D.
Contact: Beverly Corbitt (205) 934-3751 bcorbitt@uab.edu

MICHIGAN
University of Michigan Ann Arbor, MI
Site Directors: Daniel J. Clauw, MD and Quentin Clemens, MD, MSCI
Contact: Megan Halvorson (734) 998-6839 meganeb@med.umich.edu

ILLINOIS
Northwestern University, Feinberg School of Medicine Chicago, IL
Principal Investigators: David J. Klumpp, Ph.D. and Anthony J. Schaeffer, MD
Contact: Darlene Marko (312) 695-3898 d-marko@northwestern.edu

MISSOURI
Washington University in St. Louis St. Louis, MO
Site Directors: Gerald L. Andriole, MD and H. Henry Lai, MD
Contact: Rebecca Bristol (314) 454-7325 bristolr@wudosis.wustl.edu
Vivien Gardner (314) 996-8285 gardnerv@wudosis.wustl.edu

IOWA
University of Iowa Iowa City, IA
Site Director: Karl Kreder, MD, MBA
Contact: Mary Eno (319) 384-9265 mary-eno@uiowa.edu

WASHINGTON
University of Washington Seattle, WA
Site Director: Dedra Buchwald, MD
Contact: T. J. Sundsvold (206) 616-4497 mapprc@uw.edu

CALIFORNIA
Stanford University Palo Alto, CA
Principal Investigator: Sean Mackey, MD, Ph.D.
Contact: Noorulain Noor (650) 724-0522 snapl@stanford.edu

David Geffen School of Medicine at University of California Los Angeles, CA
Principal Investigators: Emeran A. Mayer, MD and Larissa V. Rodriguez, MD
Contact: Suzanne Smith (310) 206-0310 srsmith@mednet.ucla.edu
Jennifer Soh (310) 206-1757 jsoh@mednet.ucla.edu

By Jill Osborne|2017-01-31T14:24:52-08:00June 5th, 2012|Clinical Trials|Comments Off

About the Author: Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.