ICN Survey Center

Research & Survey Services

Dr. Stanley Zaslau presenting at AUAAre you conducting research??

Looking for the opportunity to gather data from a large population of IC patients??

The ICN has a long history of collaborating with researchers to develop data for various IC research studies, such as the rate of miscarriage in IC, female sexual dysfunction, male sexual dysfunction, risk factors and others. We're proud that data generated from our site has been presented at major medical conferences including the NIDDK Basic Bladder Science Symposium, ACOG, ISSWSH, AUA and others.

We offer a variety of research services, including:

Patient Recruitment: To assist with patient recruitment, we can publicize your research studies and/or clinical trials on our website or in blast e-mails. We have done this for several research centers, including the University of Maryland.

Web Based Surveys: Since our founding in 1995, we have hosted, conducted & managed a wide variety of web based surveys. Our on-line survey system provides real-time data analysis available for you and your staff 24/7 or your raw data can be sent directly to you for analysis. Downloadable and exportable in multiple formats.

For additional information, please contact ICN President Jill Osborne

Current Active Surveys

Title: Pain And Interstitial Cystitis

Researchers at the University of Alabama at Birmingham are looking for women to participate in research studies concerning the mechanisms of pain in interstitial cystitis.

If you are a woman between the ages of 19 and 45, are diagnosed with IC for at least 6 months and currently taking oral contraceptive you might be an appropriate candidate for these research studies. Participants will be asked to record symptoms related to interstitial cystitis in a diary at home for 4 months. Women who are pregnant or had a hysterectomy are not eligible.

For more information please contact our research office at:
Phone: 205-934-7703
Email: womensresearch@ccc.uab.edu
(Support: NIH/NIDDK; Principal Investigator: Ursula Wesselmann MD, Dept. of Anesthesiology, University of Alabama at Birmingham)

Title: Procaim

PROCAIM (People-Reported Outcomes from Complementary, Alternative, and Integrative Medicine) was developed under a grant from the National Center for Complementary and Alternative Medicine to study (1) the effectiveness of the full range of mind/body medical interventions and other complementary and alternative therapies, and (2) the interactions among stress, pain, and responses to the various available treatments. This is a web based study composed of surveys that will occur over a period of time!

TO ENROLL

  • Log in to their web site: http://www.procaim.org/
  • Register as a New User.
  • Select clinic name: ClinicalTrials.gov.
  • Read and sign the Consent Form.

After participants"sign" the form with their email address, participants can begin to answer the first in a series of questionnaires. The system will send participants email reminders at the time of each scheduled follow-up for one year.

Investigators: UCLA Schools of Public Health and Medicine. 
Date Added - March 2007
Status - Open
Eligible Participants - Patients with IC, fibromyalgia, IBS and other chronic recurring conditions.