ICN “Living With IC” Video Series
The ICN “Living With IC” Video series has been viewed more than 600,000 times by patients and family members. From basic tips on diet to the last IC research, our goal is to provide clear information in a hopeful and encouraging manner. We want patients to remember that they are not alone. There is always hope! If you have any topics that you would like to see covered, please send us an email! We’d love to hear your ideas, thoughts and feedback on these videos!
Looking for our recorded support group meetings? They are available on Facebook and YouTube!
Featured Videos
Did your IC begin in your 40’s? 50’s, 60’s or 70’s? After hysterectomy? Lupron use? Birth control? The loss of estrogen may be the root cause.
How IC is treated in 2022
Five Proposed Subtypes For IC – May 2016
IC Treatments in 2016 – July 2016
The Estrogen Chat
About IC/BPS
- Barriers to a Diagnosis of Interstitial Cystitis – Part One: The Many Confusing Names for Bladder Symptoms, Selecting a Doctor, Some May Not Believe that IC is Real, The Common Symptoms of IC and How To Clearly Explain Yours.
- Barriers to a Diagnosis of IC – Part Two: The Common Diagnostic Tests: PUF, KCL, Anesthetic challenge, Cystoscopy, Hydrodistention with Cystoscopy (low vs. high pressure)
- Preparing For Doctors Visits – How to Discuss Your Symptoms, Talking Effectively With Your Physician.
- Exploring IC Therapies – Protecting Yourself From Scams & False Cures on the Internet, Treatments Supported by Research, How To Discuss Treatments and Potential Risks With Your Doctor, Oral Medications (Elmiron, Hydroxyzine, Amitryptiline, Antispasmodics, Muscle Relaxants, Urinary Anesthetics) Bladder Instillations (Rescue Instillations, Heparin, Elmiron, Lidocaine), Physical Therapy, Pain Medication, Suggested Books
- Pelvic Floor Dysfunction, Physical Therapy and IC – What is Pelvic Floor Dysfunction, The “Guarding Reflex”, How It Is Diagnosed in Men and Women, Working With a Physical Therapist, Kegel Exercises are NOT Done, Learning To Relax Muscles, Your “At Home” Program, Helpful Resources, Books & CD’s.
- Is IC All In Your Head?” – How to Respond To Those Who Suggest That IC is Not Real
- Do You Know Enough About Your IC Treatment Choices?
- 2011 IC/BPS Best Book List
- Suggested Books For IC
Self-Help Strategies
- Managing Interstitial Cystitis Flares – Learn To Identify The Different Types of Flares
- How to Tell The Difference: An IC Flare vs UTI
- The Estrogen Chat For Women With IC/BPS – Estrogen plays a large role in the health of the bladder trigone and urethra. Learn what happens when estrogen levels drop and what you can do to help your bladder and other mucus membrane organs stay healthy.
- Exercise and Interstitial Cystitis – You CAN exercise when you have IC, the secret is to do exercises which keep the hips level and don’t jar the bladder.
- IC, IBS, Constipation and Soluble Fiber – Constipation is well known to irritate our already tender bladders, how soluble vs. insoluble fibers are more gentle and IBS friendly.
- Making Sitting More Comfortable – Sitting is often difficult for IC patients from a tender urethra, pelvic floor muscles, prostate, vulva or rectum. Learn how to select a cushion that can help you sit more comfortably.
- Restroom Access and IC – Worried about restroom access? ICN Jill shares tips on how to locate safe restrooms in your community.
- Do Feminine Hygiene Products Irritate? – You aren’t alone if you are sensitive to many common pads and tampons. We share some products that you might find more comfortable.
- Summer Vacation Tips for IC’ers – Would you like to take a vacation with your family?? Are you dreading a car or plane trips? Jill shares some tips on how to first select and then enjoy a family holiday. You do NOT have to stay home!
- Couples Communication: A Self Help Tip – Couples can struggle when either partner is diagnosed with a chronic condition. Learn some solid couples communication strategies and tips!
- Facing The Holidays With A New Diagnosis of IC – If you’re newly diagnosed, take heart. With just a little preparation, you can enjoy the holidays even with a tender bladder!
- Holiday Coping Strategies
Diet and Interstitial Cystitis
- ICN Food List App
- Why Drinking Water Is So Important
- The IC Diet: The Top Forbidden Foods
- Coffee and Interstitial Cystitis
- Chocolate and Interstitial Cystitis
- IC Friendly Thanksgiving Menu Ideas
Related Conditions to IC
- Anxiety and Interstitial Cystitis
- IC, IBS, Constipation and Soluble Fiber
- Sensitive Skin, IC and Vulvodynia
- Managing Dry Mouth Symptoms
Childrens Resources
IC Awareness Month
- Millions Suffer, Few Understand – IC Awareness Month 2013
- We Stand Together – IC Awareness Month 2012
- Breaking The Silence of Interstitial Cystitis
- IC Awareness Ideas and Strategies
- IC Awareness Month – October 2010
IC Conference & Educational Videos
- Dr. Lowell Parsons – San Diego (1 of 3)
- Dr. Lowell Parsons – San Diego (2 of 3)
- Dr. Lowell Parsons – San Diego (3 of 3)
- Dr. Robert Moldwin – Long Island Regional IC Forum
- AUA Webcast 2010 – What’s in a Name? Painful Bladder Syndrome: What Happened to Interstitial Cystitis? – Plenary Session featuring Drs. Christopher Payne, Deborah Erickson, Jorgen Nordling and Alan Wein
- AUA Webcast 2010 – Interstitial Cystitis/Painful Bladder Syndrome Preliminary IC/BPS Clinical Guideline – Plenary Session featuring Dr. Phillip Hanno
- AUA Webcast 2010 – Highlights in Inflammation/Infection Poster Sessions – This very brief summary highlighted some key studies presented in the inflammation and infection poster sessions and features well known IC research Dr. Lowell Parsons. These are very brief and very academic.
- AUA Webcast 2009 – Dr. Robert Moldwin reviews the highlights of the IC poster sessions. This is a very academic summary off some of the research highlights.
- AUA Webcast 2009 – Dr. Phil Hanno discussing the amitryptiline study for newly diagnosed IC patients.