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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

The IC/BPS & Pelvic Pain Patients HOLIDAY BILL OF RIGHTS

During the holiday season, it can be easy to get overwhelmed, stressed, defensive and frustrated when you are dealing with chronic pain and/or bladder discomfort. You have rights too and here's our list to help you on this journey. From the ICN family to yours, we offer you comfort and support. You have a [...]

By |2024-12-20T14:47:04-08:00December 20th, 2024|Front Page Feed, Our Blog|Comments Off on The IC/BPS & Pelvic Pain Patients HOLIDAY BILL OF RIGHTS

Book Review – Handbook on Treating Chronic Pelvic, Genital & Sexual Pain Disorders

Have you had a cystoscopy, certain that your doctor would find a severe bladder disease (or perhaps even cancer), only to be told that it looked perfectly normal? You then asked, "What's causing all of my bladder pain?" Your doctor might have shrugged in response, said "We don't know?" and prescribed yet another bladder [...]

By |2024-12-20T14:51:31-08:00December 6th, 2024|Latest Research, Our Blog|Comments Off on Book Review – Handbook on Treating Chronic Pelvic, Genital & Sexual Pain Disorders

Lactoferrin Found to Prevent Bladder Flares & Reduce Hunner’s Lesions

A new study found that lactoferrin (bLf) is remarkably helpful at calming the bladder wall and preventing IC flares. Thirty one patients with an active history of IC flares in the previous six months used lactoferrin (Valpalf®) for 17 weeks.(1) Out of 31 patients, 28 women experienced no IC flares after treatment while only [...]

By |2024-12-07T18:28:23-08:00November 22nd, 2024|Latest Research, Our Blog|Comments Off on Lactoferrin Found to Prevent Bladder Flares & Reduce Hunner’s Lesions

The Surprising Role of Stress in Cancer, Interstitial Cystitis and Widespread Pain

Last Spring, a routine mammogram revealed cancer in my left breast. Call me stunned. I was not prepared to hear the words “you have cancer" nor did I have the skills to handle the stress that a diagnosis of cancer would trigger. I felt overwhelmed and incredibly angry. I asked my surgeon “Why me? Why now?” [...]

By |2024-11-21T13:18:16-08:00November 20th, 2024|Front Page Feed, Our Blog|Comments Off on The Surprising Role of Stress in Cancer, Interstitial Cystitis and Widespread Pain

A Cool Weather Favorite – Butternut Squash & Pear Soup

Butternut Squash Pear Soup When you think of bladder friendly veggies, pumpkin and squash come quickly to mind, especially with the onset of Fall. This all-time favorite soup is incredibly easy to prepare and the perfect accompaniment to a grilled cheese sandwich. If you like a creamier soup, feel free to add your choice [...]

By |2024-11-04T16:35:55-08:00November 4th, 2024|IC Diet Project, Our Blog|Comments Off on A Cool Weather Favorite – Butternut Squash & Pear Soup

Favorite Grilling Recipes For Early Fall!

Wisps of fragrant barbecue smoke drifting over fences, the sublime sweetness of a ripe melon slice, and the sound of laughing kids running through sprinklers– this is how we like to remember the last weeks of summer and the first days of Fall. For much of the country, late September and early October are [...]

By |2024-10-03T15:02:47-07:00October 3rd, 2024|IC Diet Project, Our Blog|Comments Off on Favorite Grilling Recipes For Early Fall!

New IC Optimist Patient Magazine Now Available (Summer/Fall 2024)

This special issue of the IC Optimist is one of our biggest to date with a wide variety of articles, some of which were my way of coping with a sudden and completely unexpected diagnosis of breast cancer last May. I was hoping to spend the summer with trips to the beach, hiking and [...]

By |2024-09-17T14:16:29-07:00September 17th, 2024|Front Page Feed, Our Blog|Comments Off on New IC Optimist Patient Magazine Now Available (Summer/Fall 2024)

September is IC Awareness Month

Every September, the IC community rallies together during IC Awareness Month to educate, empower and support the many patients who have suffered in silence at home alone. This year, we hope to reach patients who are struggling with treatment and/or not responding to typical bladder therapies. Why? Because IC symptoms are often the result [...]

By |2024-09-03T17:07:54-07:00September 3rd, 2024|Awareness, Front Page Feed|Comments Off on September is IC Awareness Month

Lactobacillus Iners: A Possible Smoking Gun for IC/BPS Patients?

Dr. A. Lenore Ackerman (UCLA) is a rising star in the IC/BPS research community. Her specialty is the study of the microbiome, the bacterial communities that live within our body and, to our benefit, the urinary tract. In 2023, she was the first to suggest that some patients with IC/BPS and bladder pain may [...]

By |2024-08-27T09:52:00-07:00August 23rd, 2024|Latest Research, Our Blog|Comments Off on Lactobacillus Iners: A Possible Smoking Gun for IC/BPS Patients?

Can Scoliosis Contribute To Bladder and Pelvic Pain?

If you have spent much time in an IC support group or forum, you’ve undoubtedly seen some patients share that they have a curve in their spine, known as scoliosis. It’s been a point of discussion here at the IC Network for the past 25 years. We now understand just how and why scoliosis [...]

By |2024-08-27T10:56:58-07:00August 21st, 2024|Front Page Feed, Our Blog|Comments Off on Can Scoliosis Contribute To Bladder and Pelvic Pain?
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