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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Ten Common IC/BPS Mistakes

Interstitial cystitis (bladder pain syndrome) is a complex pelvic pain syndrome that is sometimes difficult for patients and their providers to treat. Why? Because the symptoms that you associate with your bladder and IC can be caused by things outside of your bladder wall. Yes, really! Having to use the restroom every 30 minutes [...]

By |2024-08-27T11:10:23-07:00July 25th, 2024|Front Page Feed, Our Blog|Comments Off on Ten Common IC/BPS Mistakes

IC/BPS Clinical Study: Now enrolling patients with bladder pain associated with IC/BPS

Working toward a life less interrupted for people with IC/BPS. Living with interstitial cystitis and bladder pain syndrome (IC/BPS) can be debilitating, but Ironwood is sponsoring a clinical research study of a new potential treatment that could offer relief. The IC/BPS Clinical Study will evaluate an investigational, foam-based drug designed to inhibit pain receptors [...]

By |2024-11-04T13:58:21-08:00July 12th, 2024|Latest Research, Our Blog|Comments Off on IC/BPS Clinical Study: Now enrolling patients with bladder pain associated with IC/BPS

Consumer Alert – Xylitol Now Linked To Cardiovascular Disease and Strokes

One of the challenges that many IC patients struggle with is dry mouth, a common side effect of both antihistamines and antidepressants. To ease these symptoms, we have often turned to dry mouth products that contain xylitol. A sugar alcohol, xylitol has long been considered safe for use in humans and is commonly found [...]

By |2024-08-27T11:16:20-07:00June 24th, 2024|Consumer Alerts, Latest Research, Our Blog, Research|Comments Off on Consumer Alert – Xylitol Now Linked To Cardiovascular Disease and Strokes

Tailbone (Coccyx) Injuries Are Common in Bladder & Pelvic Pain Patients

Have you ever fallen on your tailbone? Were you an ice skater, gymnast or football player and experienced multiple falls? Even one fall could play a role in your IC/BPS symptoms today. Now that we know to ask about tail bone injuries, we’ve found that they are remarkably common in the IC patient population. [...]

By |2024-08-27T11:18:34-07:00June 24th, 2024|Front Page Feed, Our Blog|Comments Off on Tailbone (Coccyx) Injuries Are Common in Bladder & Pelvic Pain Patients

Favorite Summer Drinks – Italian Sodas

Enjoy A Soda Again, Italian Style Does Diet Coke, Dr. Pepper or SevenUp trigger a flare? Are you desperate for something similar that WON'T irritate your bladder?? Let me introduce you to an Italian Soda, which is a lighter, more refreshing soda without the acids, caffeine and irritation caused by retail brands. There are [...]

By |2024-08-27T11:21:13-07:00June 21st, 2024|IC Diet Project, Our Blog|Comments Off on Favorite Summer Drinks – Italian Sodas

Favorite Summer Drinks – Bladder Friendly Iced Coffees & Frappuccinos

Many newly diagnosed patients balk at stopping their favorite summer drinks. From diet coke to a frosty lemonade, surely you can enjoy your favorite drinks on a hot afternoon. Have no fear. We have many bladder friendly summer drinks the that you can enjoy without triggering a flare. #1 - Refreshing Iced Coffees & [...]

By |2024-08-27T11:25:06-07:00June 21st, 2024|IC Diet Project, Our Blog|Comments Off on Favorite Summer Drinks – Bladder Friendly Iced Coffees & Frappuccinos

New Patient Magazine – IC Optimist – Released

We are delighted to announce that the Spring 2024 IC Optimist is now available for our members. It is now available on all member pages and is also available for purchase in the ICN Shop. In this issue: (1) Inside AUA 2024 - Highlights from the Course on IC/BPS Every Spring, the American Urology [...]

By |2024-08-27T11:27:36-07:00June 11th, 2024|Front Page Feed, Our Blog|Comments Off on New Patient Magazine – IC Optimist – Released

New Pelvic Floor Dysfunction Treatment Guidelines Released

How should we treat pelvic floor dysfunction?  Should everyone get physical therapy?  What if they don’t respond well to physical therapy?  What other treatment options are available.  New clinical guidelines for the treatment of pelvic floor dysfunction were released in the Spring of 2024. Developed by eleven women’s health specialists, this first of [...]

By |2024-05-15T15:19:10-07:00May 14th, 2024|Latest Research, Our Blog, Pelvic Floor Dysfunction, Pelvic Pain, Women's Health|Comments Off on New Pelvic Floor Dysfunction Treatment Guidelines Released

FDA Approves New Treatment For Uncomplicated UTI’s

I am delighted to share the very exciting news that a new antibiotic, Pivya (pevmecillinam) has been approved by the US FDA for women who struggle with simple, uncomplicated UTI's.(1) This new treatment that could ease the suffering and symptoms of millions of women in the USA struggling with Escherichia coli, Proteus mirabilis and [...]

By |2024-05-03T13:21:51-07:00May 3rd, 2024|Latest Research, Our Blog|Comments Off on FDA Approves New Treatment For Uncomplicated UTI’s

Does Your Belly Button Hurt? An Unusual Cause of Bladder Pain

Eileen* has suffered with IC/BPS symptoms for many years. In her late 20's, her bladder pain and symptoms have prevented her from working regularly and living independently. Now on Medicaid, finding physicians to actually treat her many symptoms has been remarkably difficult. Her case is complex and her symptoms are intense. Over the years, [...]

By |2024-05-03T14:46:31-07:00May 2nd, 2024|Front Page Feed, Our Blog|Comments Off on Does Your Belly Button Hurt? An Unusual Cause of Bladder Pain
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