Every September, the IC community rallies together during IC Awareness Month to educate, empower and support the many patients who have suffered in silence at home alone. This year, we hope to reach patients who are struggling with treatment and/or not responding to typical bladder therapies. Why? Because IC symptoms are often the result [...]
IC Awareness Month begins this week and we always start with a press release that YOU can share and send to your local newspaper and media outlets to help us raise awareness for this condition. As we have been anticipating for the past few years, the new AUA Guidelines no longer consider IC a [...]
FOR IMMEDIATE RELEASE September 1, 2021 (Santa Rosa, CA) Since the onset of the pandemic, some COVID-19 patients have developed severe “de novo” (new) genitourinary symptoms, including urinary frequency greater than 13 voids per day, as well as the need to urinate 5 or more times per night to relieve discomfort in their bladder.(1,2) Cytokine [...]
(From Jill Osborne MA) September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS. Each and every day, IC patients struggle to find [...]
Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]
Though my IC (i.e. bladder pain) officially began when I was 32, I spent much of my 20's struggling with many of the conditions we now know are related to IC. I had vulvodynia in high school and college that felt like a painful yeast infection. Despite many trips to the doctor, they rarely found [...]
Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]
CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]
Physical Therapy May Resolve Symptoms of Interstitial Cystitis and Chronic Prostatitis Released: 1-Sep-2015 2:05 PM EDT Newswise — (Santa Rosa, CA) For the millions of men and women struggling with recurring bladder and/or prostate pain, finding relief for their symptoms can be difficult. Many have taken antibiotics for years under the mistaken impression that they [...]
The most exciting time of the year for the IC community, IC Awareness Month, begins today, September 1st, as patients around the world unite to educate others about IC. We invite you to participate! Here's how you can help! 1. NOMINATE YOUR DOCTOR or PHYSICAL THERAPIST Do you have a doctor or physical therapist who treats [...]
