A Proposed Four Step IC/BPS Treatment Protocol For The Youngest Patients - When Jill van Royen sought medical care for her young daughter with IC, she found little help among the physicians in Northern California. Out of desperation, she and her daughter flew across the country to see Dr. Robert Evans at Wake Forest University. It was [...]
by Maggie Damken Being a college student is hard, and it’s even harder when you’re also an IC patient. IC, short for Interstitial Cystitis, is a chronic pain condition that affects the bladder and pelvis, and for many of us, the pain can be devastating. I developed IC as a freshman in high school, and [...]
When Jamie Barkley discovered that her 9 year old daughter was hiding urine soaked underwear around the house, she was shocked to discover that her child had been "holding it" at school out of fear that she would get into trouble for asking to use the restroom. A week later, her daughter ended up in the ER with [...]
I write to you with a request for help on behalf of a ten year old with IC who is struggling to find a physician. Her mother is seeking the names of urologists or pediatricians who are knowledgeable and experienced in treating young children with IC. She is also seeking stories, advice and ideas from [...]
(By Jill Heidi Osborne, ICN President) It's hard enough to face pelvic pain as an adult, but can you imagine being a young child who can't sleep through the night, can't sit through class and who may not be believed by their families or doctors? Children as young as three years old have been diagnosed with [...]
