Seeking participants for research study, June 30 – July 6 1.5 hour phone interview $200 incentive We are looking for people between the ages of 50 and 80 who meet the following criteria: Have been diagnosed with Overactive Bladder by a physician Have completed 12 weeks of PTNS therapy Returned to their doctor for a [...]
How You Can Help Barbara Flanigan and Her Search For the Cause of IC (Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, [...]
Chronic Interstitial Cystitis Study - San Diego, CA As part of a clinical research study, we are collecting blood and urine samples from female volunteers who have been diagnosed with chronic Interstitial Cystitis for atleast 4 months. Procedures for this single, one hour study visit, will involve providing health/personal information, blood and urine sampling. Participants [...]
Each year, promising new studies on interstitial cystitis, bladder pain syndrome and chronic pelvic pain syndrome are presented at the annual meeting of the American Urology Association. Here are the IC/BPS research highlights for AUA 2015. The full abstracts can be viewed at: http://www.aua2015.org/ Quitting Smoking Improves Outcome in Urologic Disease Researchers at the Henry [...]
Dr. Phil Hanno presented the updated AUA Guidelines for the treatment of interstitial cystitis. First announced in 2011, the AUA Guidelines offer a comprehensive yet simple treatment plan for the diagnosis and treatment of interstitial cystitis. Presented in six phases, patients generally begin with Step One Interventions and then slowly work there way through additional levels. [...]
The American Urological Association annual meeting is often the highlight of the year for researchers and clinicians working with interstitial cystitis. This year the conversations/lectures/research focused to a great degree on pelvic pain syndrome. One highlight was Drs. J. Curtis Nickel, Dan Shoskes and Michel Pontari who presented the cases of two men struggling with pelvic [...]
Irritable bowel syndrome is a strongly related condition to interstitial cystitis and chronic pelvic pain. If you're like most patients, you've probably faced doctors (and family members) who simply didn't believe you and/or who may have suggested that this was a mental or psychiatric disorder. Not true and now we have concrete evidence that will [...]
I've often said that if there was one medical condition that I could fix first, it would be the scoliosis I developed in Junior High. I'm supposed to be an inch taller but, instead, I have a nicely balanced "S" curve in my spine that few can see. I often get back pain and muscle [...]
Female participants needed for an online questionnaire study on women’s health and genital pain. The purpose of this study is to develop a questionnaire (the Vulvar Pain Assessment Questionnaire) that will help health care professionals assess symptoms of chronic vulvar pain. Participants must be 18 years of age or older, be able to read and [...]
(January 2015) The only oral medication FDA approved for interstitial cystitis in the USA, Elmiron® (aka pentosan polysulfate), has received mixed results in research studies. But, for the patient community, the dominant issue is the cost as prices have increased steadily in the last few years. We're interested in hearing from you, the IC patient, [...]
