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Jill’s Journal

The blog of IC Network founder Jill H. Osborne, sharing her comments, thoughts, ideas and actions happening in the IC and pelvic pain movement.

The ICN is Proud of Our Service to the US Army IC Research Program

For the fourth year in a row, ICN President Jill Osborne has served as a panelist for the Congressionally Directed Medical Research Program (CDMRP) administered by the US Army. Interstitial Cystitis is one of more than two dozen medical conditions that are considered critical to combat readiness. In Fiscal Year 2014, the US Government set [...]

By |2017-01-31T10:44:15-08:00December 29th, 2014|Jill's Journal, Our Blog|Comments Off on The ICN is Proud of Our Service to the US Army IC Research Program

Is Interstitial Cystitis Caused by Anger? No!

Allright, I'm angry right now. Yes, ANGRY. Thoroughly and completely pissed. Why? Because, in 2014, an IC patient in the South of the USA was told that the reason that she had IC was because she was angry about her ex-boyfriend. Yes, he really, REALLY said that. This was after she had been diagnosed by [...]

By |2017-01-31T10:50:02-08:00November 26th, 2014|Awareness, Jill's Journal, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Is Interstitial Cystitis Caused by Anger? No!

Has an IC flare kept you home during the holidays?

Why I Said No To Thanksgiving - An IC Holiday Survival Story Here's one of the most frustrating questions that IC patients often struggle with. "Should or shouldn't we go to Grandma's House for a holiday celebration if IC is flaring?" In my first year of IC, my family really didn't understand what I [...]

By |2023-11-17T13:10:53-08:00November 18th, 2014|Holiday, Jill's Journal, Our Blog, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Has an IC flare kept you home during the holidays?

Europeans Release Updated Chronic Pelvic Pain Guidelines

By Jill Heidi Osborne, MA One of the barriers that IC patients face is a general lack of understanding of the many conditions which can cause and/or contribute to our pelvic pain. This lack of understanding has contributed to incorrect diagnoses, treatments, inappropriate hysterectomies and, often, years of suffering before the patient receives a correct [...]

By |2017-01-31T10:55:44-08:00October 23rd, 2014|Jill's Journal, Our Blog, Pelvic Pain|Comments Off on Europeans Release Updated Chronic Pelvic Pain Guidelines

Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

Do you hide your IC from family and friends? Do you say "I'm fine" even when you're not? A man with IC was told by his urologist NOT to tell anyone that he was experiencing severe bladder pain. The attitude was "be a man" and, for a couple of years, this courageous IC patient suffered [...]

By |2017-01-31T10:56:52-08:00October 20th, 2014|Awareness, Inspirational Quotes, Jill's Journal, Our Blog|Comments Off on Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

Pin of the Day – Everyone Has A Story

One of the hardest parts about IC is that we look normal on the outside, but on the inside we're struggling with pain, stress, worry and anxiety. Our friends and family can't read our minds and, let's be honest, we often get frustrated with those who underestimate or minimize our IC. It's important to remember [...]

By |2017-01-31T10:57:17-08:00October 18th, 2014|Inspirational Quotes, Jill's Journal, Our Blog|Comments Off on Pin of the Day – Everyone Has A Story

Great New IC Book Released – The Proactive Patient: Managing IC/BPS and Related Conditions by Gaye and Andrew Sandler

Gaye & Andrew Sandler have released their first new book in a decade for men, women & children struggling with IC and its many related conditions. What sets this husband and wife team apart from so many other authors who have written about interstitial cystitis is their focus on patient comfort. In The Proactive Patient: Managing [...]

By |2017-01-31T12:37:49-08:00August 4th, 2014|Awareness, ICN Shop & Mail Order Center, Industry News, Interstitial Cystitis IC/BPS, Jill's Journal, News, Our Blog, Pelvic Floor Dysfunction, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Great New IC Book Released – The Proactive Patient: Managing IC/BPS and Related Conditions by Gaye and Andrew Sandler

Been Punished By Your Employer For Using The Restroom?

One Woman Forced To Pee in A Box, Then Gets Fired, After Repeatedly Asking For Restroom Access It's hard to believe that, in 2014, companies are still trying to punish people who need to use the restroom more frequently.  Case in point, Chicago's WaterSaver Faucet Company. Their union, Teamsters local 743, has filed a complaint with the [...]

By |2017-01-31T12:40:56-08:00July 16th, 2014|Awareness, Consumer Alerts, Editorial, Jill's Journal|1 Comment

Ten Money Saving Tips For IC/BPS Treatments & Drugs

The first two phone calls I received Monday morning were from elderly gentleman who had been taking, with great success, Elmiron for their IC. The problem for each was that they had reached the "Medicare Donut Hole" and had just been told that they would have to pay more than $900 per month for their [...]

IC & Independence Day – Get Out & Celebrate

Many interstitial cystitis patients dread holidays, such as Independence Day. The joyful family picnic or nighttime firework display lose their appeal when you’re struggling with a sensitive bladder, need restroom access and would like to eat something that won’t trigger an IC flare. Yes, we have a bladder disorder. Yes, it gives us plenty of [...]

By |2017-01-31T12:42:30-08:00July 3rd, 2014|Diet & Food, Jill's Journal, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on IC & Independence Day – Get Out & Celebrate
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