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Consumer Alerts

Consumer Alerts & FDA Recalls covering medications and other alerts affect interstitial cystitis, bladder and pelvic pain patients

Consumer Alert – Xylitol Now Linked To Cardiovascular Disease and Strokes

One of the challenges that many IC patients struggle with is dry mouth, a common side effect of both antihistamines and antidepressants. To ease these symptoms, we have often turned to dry mouth products that contain xylitol. A sugar alcohol, xylitol has long been considered safe for use in humans and is commonly found [...]

By |2024-08-27T11:16:20-07:00June 24th, 2024|Consumer Alerts, Latest Research, Our Blog, Research|Comments Off on Consumer Alert – Xylitol Now Linked To Cardiovascular Disease and Strokes
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Popular Urology Drug, Hyoscyamine, Recalled

Hyoscyamine sulfate, a popular drug use for urology patients struggling with incontinence, has been recalled by Virtus Pharmaceuticals. This recall is the result of irregular medication levels in the medication which can give patients either too much (super potent) or too little (sub potent) medication. Taking a product that is superpotent could result in hot/dry [...]

By |2017-01-18T12:01:19-08:00September 20th, 2016|Consumer Alerts, Front Page Feed, Our Blog|Comments Off on Popular Urology Drug, Hyoscyamine, Recalled
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Nail Polish Toxins Found In Urine Could Influence Bladder Health

If you love getting a manicure or pedicure, a recent announcement by the Environmental Working Group will make you rethink the brands you might be using. Polishes by Sally Hansen, Essie, OPI, Revlon, Wet N Wild, Spa Ritual, Orly, theBalm, Nuance, Maybelline and Beauty without Cruelty contain a chemical called triphenyl phosphate (TPHP), known for its endocrine-disrupting [...]

By |2017-01-18T12:02:36-08:00October 21st, 2015|Consumer Alerts, Jill's Journal, Our Blog, Toxic Exposures, Women's Health|Comments Off on Nail Polish Toxins Found In Urine Could Influence Bladder Health
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Why You Shouldn’t Load Up on NSAID’s for IC, Bladder or Pelvic Pain

When you struggle with IC and/or chronic pain and don't have access to traditional pain relievers, using an OTC pain relief pill may feel like your only option. Right? I, like most patients, turned to Advil and Tylenol to help reduce my bladder pain when I was first diagnosed. Seriously, IC can hurt terribly and if it's the [...]

By |2017-01-31T10:12:34-08:00July 14th, 2015|Consumer Alerts, Jill's Journal, Our Blog, Pain Care, Pelvic Pain|Comments Off on Why You Shouldn’t Load Up on NSAID’s for IC, Bladder or Pelvic Pain
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Pain Relief Flurbiprofen Topical Creams Can Be Fatal To Pets – FDA alert

Editors Note - It's not unusual for IC and/or pelvic pain patients to use a variety of creams to help reduce pain. Today, the FDA issued an alert about flurbiprofen topical creams that could be fatal to companion animals (cats) in the household, apparently through exposure from the human who used the medication. Pet lovers [...]

By |2017-01-18T12:03:33-08:00April 17th, 2015|Consumer Alerts, Our Blog|Comments Off on Pain Relief Flurbiprofen Topical Creams Can Be Fatal To Pets – FDA alert
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Common IC Medications, Anticholinergics, May Pose Risk For Seniors

(Editors Note: Earlier this week, I received a phone call from an older IC patient who was suffering from severe side effects while using Amitriptyline. While it was helping reduce her pain, she was struggling with side effects. In talking with her, one thing that I noticed was that she was having trouble following the conversation. She [...]

By |2017-01-31T10:40:32-08:00January 17th, 2015|Consumer Alerts, Our Blog|Comments Off on Common IC Medications, Anticholinergics, May Pose Risk For Seniors
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Acidiphilus and IC – Should we take it?

Taking a natural approach to the treatment of any condition, including interstitial cystitis, makes certain sense. And if you look at the American Urological Association guidelines for the treatment of IC, they embrace the use of nutraceuticals in Step One of their treatment guidelines along with other self-help strategies. But, we should not assume [...]

By |2017-01-31T10:48:13-08:00December 9th, 2014|Consumer Alerts, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Acidiphilus and IC – Should we take it?
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Been Punished By Your Employer For Using The Restroom?

One Woman Forced To Pee in A Box, Then Gets Fired, After Repeatedly Asking For Restroom Access It's hard to believe that, in 2014, companies are still trying to punish people who need to use the restroom more frequently.  Case in point, Chicago's WaterSaver Faucet Company. Their union, Teamsters local 743, has filed a complaint with the [...]

By |2017-01-31T12:40:56-08:00July 16th, 2014|Awareness, Consumer Alerts, Editorial, Jill's Journal|1 Comment
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Bladder Rape by Silver Nitrate

How One Patient Was Forced To Have A Treatment Without Her Consent (Author: Jill H. Osborne MA, President, IC Network) There is no excuse for what happened to a female IC patient THIS YEAR. Her primary care provider suspected that she had interstitial cystitis and referred her to a urologist in her community. She made [...]

By |2017-01-31T13:11:43-08:00April 7th, 2014|Awareness, Consumer Alerts, Editorial, Jill's Journal, Must Reads, News, Our Blog, Patient Stories|Comments Off on Bladder Rape by Silver Nitrate
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Pesticides now linked to Parkinson’s Disease, Alzheimer’s, Endometriosis

You may wonder why the ICN is covering research for Parkinson's disease. This study demonstrates, yet again, that exposure to man made chemicals has the potential of causing serious chronic disease, in this case Parkinson's disease, in patients with a specific genetic makeup. Frankly, this comes as no surprise. A few days ago, another study [...]

By |2017-01-31T13:17:25-08:00February 6th, 2014|Consumer Alerts, News, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain, Toxic Exposures|Comments Off on Pesticides now linked to Parkinson’s Disease, Alzheimer’s, Endometriosis
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