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Patient Stories

“Hope, Pray, and Know You’re Not Alone” By Kristie

My name is Kristie Jones, I am from Georgia, and I was diagnosed with IC roughly about two years ago. I believe that I have had this disorder for some time, however was never properly diagnosed. The symptoms of a bladder infection began to occur on a monthly basis when I was 15, and the doctor [...]

By |2017-01-18T12:09:36-08:00December 11th, 2012|Patient Stories|Comments Off on “Hope, Pray, and Know You’re Not Alone” By Kristie

“There Is Always Hope” By Jennifer

“What? You have to go again? We just stopped! That is crazy. You’re like a puppy who has to stop every ten feet and pee on something to mark its territory!” We were on our way to Cape Cod for our summer vacation, and my parents sat in the front seat of the car, laughing [...]

By |2017-01-18T12:09:37-08:00December 11th, 2012|Patient Stories|Comments Off on “There Is Always Hope” By Jennifer

“Choosing To Live Is A Wonderful Choice” By Cindy S.

I have to share my story about IC because of the inspiration of others on the IC Network site. I figure if they can write about it so openly and honestly, so can I. My journey with IC began many years ago, twenty three years to be exact. I was a whole lot younger then [...]

By |2012-12-11T18:37:19-08:00December 11th, 2012|Patient Stories|Comments Off on “Choosing To Live Is A Wonderful Choice” By Cindy S.

“Please Tell Me I’m Not Making It Up” By Laura

I am 20 years old now, but I can never remember a time when I did not have something wrong with my bladder. As soon as I was old enough to talk, I remember telling my mother that it hurt “down there” when I went to the bathroom. At age six, I was diagnosed with a [...]

By |2017-01-18T12:09:38-08:00December 11th, 2012|Patient Stories|Comments Off on “Please Tell Me I’m Not Making It Up” By Laura

“Stay Strong and Have Faith” By Brigette

At only 19 years old, I have suffered with IC for a little over 3 years now. It seemed to all start suddenly in January of 2002. I spent the night at a friend's house and woke up early the next morning with horrible pain in my bladder and urethra. I was terrified, I had no [...]

By |2017-01-18T12:09:39-08:00December 11th, 2012|Patient Stories|Comments Off on “Stay Strong and Have Faith” By Brigette

“I’m Glad to Know I’m Not Alone” By Salena

I'm glad to know I'm not alone. I recently have been diagnosed with IC after a lot of second opinions and finally a concerned OBGYN. I too, like many of the stories read, have been trying to get someone to listen to me for years. I have had other gynological problems which resulted in several surgeries [...]

By |2012-12-11T18:23:40-08:00December 11th, 2012|Patient Stories|Comments Off on “I’m Glad to Know I’m Not Alone” By Salena

“One Unbelievable Story” By Kimberly M.

Some people are just “plagued with bad health” so-to-speak, and I am one of them! In fact, my mother was sick throughout her entire pregnancy with me! I have already had 12 surgeries in my almost 22 years on this earth – and facing more! Living as a Christian, I have always been given the [...]

By |2017-01-18T12:09:39-08:00December 11th, 2012|Patient Stories|Comments Off on “One Unbelievable Story” By Kimberly M.

“A Whole New World and A Whole New Beginning:)” By Sherry

Editors Note - Sherry's story is an unusual one and perhaps kind of scary for someone newly diagnosed. IC patients rarely require bladder removal. We're happy that it did improve Sherrys life in so many ways. It should be noted, however, that bladder removal is a last alternative and isn't always effective for pain control. [...]

By |2017-01-31T14:22:42-08:00December 10th, 2012|Patient Stories|Comments Off on “A Whole New World and A Whole New Beginning:)” By Sherry

“I Am Not A Hypochondriac” By Della

For what I have read, I think that I am lucky because, for me it was 12 months of severe pain before I was diagnosed with IC. For that whole year I kept on going to gynecologists because I thought I had a yeast infection, but nothing cured it. Now that I think back in [...]

By |2013-04-03T18:35:20-07:00December 10th, 2012|Patient Stories|Comments Off on “I Am Not A Hypochondriac” By Della
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