ICN Earns Top Honor & Recommendation From Int'l IC Study

ICN Earns Top Honor & Recommendation From Int’l IC Study

The IC Network received the top nod from researchers studying the accuracy, credibility, readability and quality of IC/BPS websites. Researchers in the UK conducted a broad search of the web for all IC/BPS websites. They identified 18 websites that were analyzed in depth. Of these, only four were found to have good, quality information. They wrote: “We found the best information was provided by ic-network.com, ichelp.org, painful-bladder.org and niddk.nih.gov.” The researchers encouraged physicians to refer patients to these websites, ” It is important for clinicians to recognise the benefit that these resources can provide and embrace the good ones as valuable educational resources.”

We say THANK YOU and offer our congratulations to the ICA, the International Painful Bladder Foundation and the NIDDK for their hard work! In 2011, researchers at Harvard conducted a similar study which rated the ICN and the NIDDK as the top two IC/BPS websites on IC.

Source: SA Turlapur, et al.Quality of information on the internet related to bladder pain syndrome: a systematic review of the evidence. Int Urogynecol J Published online- April 2013

By Jill Osborne|2017-01-31T14:04:59-08:00June 15th, 2013|ICN Announcements, Industry News, Latest Research, News|Comments Off

About the Author: Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.