New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

Principal Investigator: Katherine Volpe, MD

This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California.

We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience a delay in getting a diagnosis. We hope to learn about patient experience after receiving a diagnosis of IC/BPS.

If you agree to participate, you will complete a brief survey. You will be asked about your demographics, your treatment and your symptoms and will take about 15 minutes to complete.

There may be risks including discomfort or feeling upset associated with completing the survey. There is/are no direct benefit/s to participation; however, the knowledge obtained from this study may provide justification for earlier identification of patients with IC/BPS.

Participation is voluntary. You can refuse to complete the survey or skip any questions, without any consequence to you. No names or personal identifying information will be collected in the survey. The surveys collected during this project will be destroyed as soon as the data is analyzed. You will not be paid for completing the survey.

Click Here To Take The Survey

By Jill Osborne|2017-11-13T15:48:30-08:00November 13th, 2017|ICN Announcements, Our Blog, Survey Center|Comments Off

About the Author: Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.